SEVERE M.E. WEEK, 2025

SEVERE M.E. WEEK, 2025

I always made the most of every day ...

Fitting in so much, the most I could ...

I had such plans and dreams and hopes and wishes ...

"Glass half-full" ...  "Seize the day" ...  "Life's good"

But, now, I'm forced to live a totally different way ...

Avoiding P.E.M*., or crash, or flare ...

To prevent collapse, exhaustion, who knows what ...

Now,  I must live the very least I dare ...

Sometimes, I think I'm dealing with this "life"...

That I am bearing up, have shed all tears ...

But then, a tidal wave of grief engulfs me ...

So very many losses .. 

So lost, so many years ...

Ffion

*P.E.M.  "Post-exertional malaise (P.E.M.) is the worsening of M.E. symptoms,  following even minor physical or mental exertion.  Symptoms typically worsen 12 to 48 hours after activity and last for days or weeks."  Malaise, (lit. "ill-at-ease) does not begin to describe it.... "collapse" a much better descriptor.